Welcome to canadaba.ca's message boards

MemberlistMemberlist  ProfileProfile Log in to check your private messagesLog in to check your private messages Log inLog in
 

Is it common to have to wait to see a reputable surgeon
Goto page 1, 2  Next
 
Post new topic   Reply to topic    www.canadaba.ca Forum Index -> Breast cancer/reconstruction support section
View previous topic :: View next topic  
Author Message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 06, 2005 5:40 pm    Post subject: Is it common to have to wait to see a reputable surgeon Reply with quote

Hi to everyone - I have just joined this site & I'm hoping it can prove to be helpful in questions I have concerning breast reconstruction.
There is a lot of information around & I was wondering if anyone out there has been informed about cohesive gel implants.
Hoping I can get some answers =
Thank you,
Marilyn:-) Confused
Back to top
View user's profile Send private message
admin
Site Admin


Joined: 12 Sep 2002
Posts: 9334
Location: Toronto, Ontario

PostPosted: Sun Feb 06, 2005 5:46 pm    Post subject: Reply with quote

Hey Marilyn!

I just got your email and was going to reply and mention this section of the boards....but see you've made it here!

You will see in this section Linda's story....she has the gel implants so its definitely possible.

As for the wait....I think when its covered by OHIP then you do have a long wait. Only when you are paying privately do you get in within a few months. Linda will be able to let you know the wait she had.

Glad to have you on here and hope we can help you get some info Smile
_________________
PLEASE MENTION CANADABA.CA WHEN ON CONSULTATIONS!
Back to top
View user's profile Send private message Send e-mail Visit poster's website
Riyane



Joined: 11 Oct 2004
Posts: 1758
Location: Vancouver

PostPosted: Sun Feb 06, 2005 5:53 pm    Post subject: Reply with quote

Welcome, Marilyn. I don't have any knowledge of reconstruction and goings-on around that, but hope you find the information you are looking for here. Linda seems to be very informative and friendly, and there is also another woman on the forum recently trying to gather info too.

Although not reconstruction, but many of the women here including myself have cohesive silicone implants and might be able to help with some of your questions, so ask away!! Very Happy
_________________
33 / 5'10" / 3 children: 1 post-ba
Pre-ba: 36/38AA (2 kids b/fed)
Post-ba: 38C
December 6, 2004 - Dr. Mathew C. Mosher
Inamed 410 MX (anatomicals)
370g cohesive gel - unders - crease incision


http://www.makemeheal.com/pictures/viewAlbum.php?albumid=5425&password=progress (Now includes pregnancy & breastfeeding pics as of May 22/09)

Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 06, 2005 7:20 pm    Post subject: Reply with quote

admin wrote:
Hey Marilyn!

I just got your email and was going to reply and mention this section of the boards....but see you've made it here!

You will see in this section Linda's story....she has the gel implants so its definitely possible.

As for the wait....I think when its covered by OHIP then you do have a long wait. Only when you are paying privately do you get in within a few months. Linda will be able to let you know the wait she had.

Glad to have you on here and hope we can help you get some info Smile


Thanks for the replies back - am a little confused as to where I can find Linda's Story ???
This site is not like other sites - & will I be getting answers with my email address -
Confused at the moment
Exclamation Arrow Arrow
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 06, 2005 7:25 pm    Post subject: Reply with quote

Riyane wrote:
Welcome, Marilyn. I don't have any knowledge of reconstruction and goings-on around that, but hope you find the information you are looking for here. Linda seems to be very informative and friendly, and there is also another woman on the forum recently trying to gather info too.

Although not reconstruction, but many of the women here including myself have cohesive silicone implants and might be able to help with some of your questions, so ask away!! Very Happy


To Riyane - Am so surprised that nobody has mentioned cohesive gel implants to me before - I just happened upon an article in yesterday's paper & was really curious if these types of implants would be a good choice for me - of course that might depend on what my Doctor say's - If I can ever find one
Thanks for the reply back,
Marilyn Confused Confused Confused
Back to top
View user's profile Send private message
admin
Site Admin


Joined: 12 Sep 2002
Posts: 9334
Location: Toronto, Ontario

PostPosted: Sun Feb 06, 2005 7:55 pm    Post subject: Reply with quote

Marilyn wrote:

Thanks for the replies back - am a little confused as to where I can find Linda's Story ???
This site is not like other sites - & will I be getting answers with my email address -
Confused at the moment
Exclamation Arrow Arrow


ok I will do my best to explain:

this is the main page of the message boards
http://www.canadaba.ca/php/index.php
you can get back to this page anytime by clicking on the link that says
www.canadaba.ca Forum Index
at the bottom of the logo top left.

On the main page you will see lots of sections, like the one you are in now the Breast cancer/reconstruction support section which is here
http://www.canadaba.ca/php/viewforum.php?f=37

when you are in any section you will see lots of different Topics...these are conversations people have started just like you started this one. You will see Lindas story...it is in this section
http://www.canadaba.ca/php/viewforum.php?f=37
titled 'my story'

click on the link saying 'my story' and you cdan read and reply to her there.

So, people talk to eachother by replying to topics or posting new topics. Or people private message eachother....you have your own private mailbox you can get to at the top right....it should say 'you have no new messages' or 'you have 1 new message'

If you received an email you must have it set up to email you anytime someone replies to your post....you can turn off this function in your 'profile'...to get to your profile click on 'profile' (top right, just before it says you have no new messages) and there you can change your settings and say no to having an email notify you when people reply to you.

I dont know if any of that made sense!
_________________
PLEASE MENTION CANADABA.CA WHEN ON CONSULTATIONS!
Back to top
View user's profile Send private message Send e-mail Visit poster's website
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Mon Feb 07, 2005 10:12 am    Post subject: Reply with quote

Hi Marilyn! You found a great site with a lot of supportive women.
You shouldn't have to wait any longer than the "normal" waiting period to get a consult which could be anywhere from three weeks to 12 weeks. Of course it is possible if the doctor is overloaded with patients. The fact that your a reconstruction patient has no bearing (or at least it sure shouldn't!). I never had to wait longer than one month and I went on three consults.
First off, go to your doctor and see if you can get a referral name from him/her. When you get a doctors referral, the consultation charge from the PS is usually waived. Try to get referrals from your surgeon as well and you can even try the Canadian Breast Cancer Foundation. They might be able to give you a list of PS's as well.
I must admit I should have done more research on PS's that specialize in reconstruction.
Although I am happy with my results I think I might have had maybe a little better outcome with a reconstruction specialist. Who knows?? Like I said, I am happy so I guess that's what matters most Very Happy
OHIP will pay for the reconstruction and there are some PS's that don't like having to do all the paperwork and submit it to the government. They also don't get paid as much. Actually, the approval from OHIP took longer than trying to get a consult!
I love the fact that I can wearing a bathing suit and look good Very Happy I'm glad I did it.
Do you have a few PS's lined up that you're waiting to see??? Are you just waiting for one? Sometimes your doctor can get you in sooner.

Ask me any question and I do my best to help answer them for you.

Glad you found this site - hope to hear from you soon!

Linda
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Tue Feb 08, 2005 5:05 pm    Post subject: Reply with quote

linda wrote:
Hi Marilyn! You found a great site with a lot of supportive women.
You shouldn't have to wait any longer than the "normal" waiting period to get a consult which could be anywhere from three weeks to 12 weeks. Of course it is possible if the doctor is overloaded with patients. The fact that your a reconstruction patient has no bearing (or at least it sure shouldn't!). I never had to wait longer than one month and I went on three consults.
First off, go to your doctor and see if you can get a referral name from him/her. When you get a doctors referral, the consultation charge from the PS is usually waived. Try to get referrals from your surgeon as well and you can even try the Canadian Breast Cancer Foundation. They might be able to give you a list of PS's as well.
I must admit I should have done more research on PS's that specialize in reconstruction.
Although I am happy with my results I think I might have had maybe a little better outcome with a reconstruction specialist. Who knows?? Like I said, I am happy so I guess that's what matters most Very Happy
OHIP will pay for the reconstruction and there are some PS's that don't like having to do all the paperwork and submit it to the government. They also don't get paid as much. Actually, the approval from OHIP took longer than trying to get a consult!
I love the fact that I can wearing a bathing suit and look good Very Happy I'm glad I did it.
Do you have a few PS's lined up that you're waiting to see??? Are you just waiting for one? Sometimes your doctor can get you in sooner.

Ask me any question and I do my best to help answer them for you.

Glad you found this site - hope to hear from you soon!

Hi Linda -
Did not get an email that you had responded to my questions - really appreciate your lengthly message back.
You are also in the Toronto area - (are you not???)
I have been given three referrals - these three Doctor's who do specialize in breast reconstruction are so booked & the one in particular- a Dr. Semple who works out of Women's College Hospital - I maybe able to get a consultation at the end of next year!!!!!!!!!!!
I am seeing my surgeon on Thursday (the Dr. who did my mastectomy) & I will ask him again if he can refer me to someone ( I want someone I can relate to (if that's at all possible)
Why they make all of this so dragged out - we have not been through enough already!!
Thanks again Linda - keep in touch
Marilyn Smile Smile Smile

Linda
Back to top
View user's profile Send private message
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Tue Feb 08, 2005 8:03 pm    Post subject: Reply with quote

OMG Marilyn,
I've never heard of such a wait!!!!!! The end of next year!!!!!! Shocked
Yes, please ask your surgeon, also make sure your put on a cancellation list with the others.
Having to wait that long just shows you how many other women are looking for reconstruction TOOOOOO MANY!
I'm am so very very sorry to hear this news.

Don't give up! Call every week, keep asking for referrals.

Are you looking for a tram flap, implants or a general what's best for me?
When did you have your initial surgery? Also did the surgeon leave a "envelope" of skin for reconstruction?

I am just north of Toronto (a stone's throw).

And yes Marilyn.........we've been through ENOUGH! This wait for you is so dishearting.

((((((((((huge huge huge hugs for you))))))))))))

Please let me know how it goes when you meet with your Surgeon.

I'll try to think of more ways to help you out!

Love Linda
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Tue Feb 08, 2005 10:39 pm    Post subject: Reply with quote

To Linda - first to try and answer your questions - but before then - I seem to be having trouble getting to the place where I want to view my replies??? I'm sure it's not that complicated!!
Had my surgery in Aug - 2003 - at the time I was in total shock as it took so long for them to come up with my diagnosis. Many faults along the way & it was a core needle byopsy that found my two (yes two!!) tumors.
With all of this to contend with - I was not interested in breast reconstruction so there was no preparation for that procedure. Now after some time - I have been thinking about at least speaking to a PC & see if I am a good candidate or not. I'm very small breasted - but maybe in order to be symetrical - they would also do an implant on the remaining breast - Gee - after all of these years - maybe I can have some boobs!!
Even though I am a grandmother with three grandchildren - I am in very good shape - though the tomoxifin I have to take is making me feel bloated & seems to have put on weight around my waisline. I am a former ballet dancer so being in shape has always been very important to me.
I think I have talked tooooooooo long but will let you know how the appt. with my surgeon goes & if I can get any help regarding PS's
Thanks for the hugs Linda - very appreciated
Hugs back to you,
Marilyn
Back to top
View user's profile Send private message
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Wed Feb 09, 2005 10:14 am    Post subject: Reply with quote

Hi Marilyn,

They can put an implant in the other breast. Sometimes OHIP pays for it, sometimes they won't. It primarily depends on your PS and whether or not they will go to bat with you with OHIP. Some PS's will outright say "no" and it will cost you couple of thousand $$$ for the one side.
I was fortunate in that I got both done at no cost.
As far as being symetrical...............well, it doesn't quite work that way unless you get a lift on the non-masctemony side. But that will give you yet another scar and yeesh we've got enough! Sad
I'm very lop-sided when not wearing a bra. The reconstruction side is high and tight because it's "new" and the old saggy one Wink is still saggy but bigger Laughing . In a bra they even out. Just because you get an implant, doesn't mean you'll be "perky". It just means you'll have a larger breast with the same attributes as before.

I'm not trying to put you off having this procedure. I've never regretted it and love the way I look in clothes and a bathing suit. Cool

I just want you to know the realistic side of women considering reconstruction.

Looking forward to hearing from you - please keep in touch.

Linda
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Thu Feb 10, 2005 9:41 pm    Post subject: Reply with quote

To Linda - yesterday I got a call from a P.S. name being a Dr. Sean Rice - who will see me in May!!!!!!!! was very happy news to me indeed.
Had my appt. with my surgeon today - & asked him what he thought about all of this - & his answer was - to go for it. This Dr. Rice has been trained by the best P.S.'s related to Women's college Hospital & therefore he feels would do right by me. May seems like a long way in the distance - but at least I have an appt. for a consultation so that's one step in the right direction. This particular Doctor is among the P.S.'s listed on this site -
My check-up was great - I'm always worried before having this - but so far so good!!
Thanks for your interet - & I will keep all of you posted
P.S. If anyone belonging to this site has had Dr. Rice as a breast reconstruction Doctor - I would be most interested in getting their comments on how they thought of him & what kind of treatment & outcome he performed.
Stay well everyone,
Till then,
Marilyn Very Happy Very Happy Very Happy
Back to top
View user's profile Send private message
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Fri Feb 11, 2005 10:52 am    Post subject: Reply with quote

Marilyn - that's GREAT NEWS!!!! May isn't so far away.

YEEEEEE HAWWWWWWWWWW!!!

I'm thrilled for you! I'm also glad you talked to your surgeon, it's always good to get input from your "team".

I don't know about Dr. Rice but he's sounds capable.

Again - GREAT NEWS Very Happy Very Happy Very Happy
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Sat Feb 12, 2005 8:37 pm    Post subject: Reconstruction Reply with quote

Marilyn--I'm currently going through reconstruction. Just had my splint/explander put in Friday. I'd be happy to help any way I can.
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sat Feb 12, 2005 10:13 pm    Post subject: Reply with quote

Hi Candycane1
It would be great just to get your input on how you feel & what happens when they start stretching your chest skin.
Where they able to tell you how many weeks you would have to go through this before getting the permanent breast implant.
Also I would be interested in knowing what breast implant you were advised to use.
Thanks so much for responding - I am happy to get all the info I can get - especially before I see my P.S. in May.
Keep in touch Candycane1
Marilyn Very Happy Very Happy Very Happy
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sat Feb 12, 2005 10:56 pm    Post subject: Reply with quote

To Candycane 1 - -
I wanted to say in my last message - all the best going through all of this & that I'm amazed at how fast you were responding - after only having your surgery on Friday.
Were a strong lot - us women - not much can hold down a good spirit - which I can see you & all of the women on this site have.
Love & a hug from me to you,
Marilyn Very Happy Very Happy Very Happy Very Happy Very Happy [/img]
Back to top
View user's profile Send private message
admin
Site Admin


Joined: 12 Sep 2002
Posts: 9334
Location: Toronto, Ontario

PostPosted: Sun Feb 13, 2005 12:33 pm    Post subject: Reply with quote

Marilyn how did you find out about Dr Rice, you said he phoned you? have you asked if he can put you in touch with some of his patients? might help to talk to someone.
_________________
PLEASE MENTION CANADABA.CA WHEN ON CONSULTATIONS!
Back to top
View user's profile Send private message Send e-mail Visit poster's website
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 13, 2005 2:30 pm    Post subject: Reply with quote

The name of Dr. Rice was one of the Doctor's that my surgeon's office was trying to get an appt. with. Seems most of the P.C.'s connected with Women's Collage - are booked up for a year & a half in advance - so this Dr. Rice was on their list & they finally managed to get an appt. in May.
I'm quite sure he is a very capable Doctor - it just would be nice to have some info about how he is with his patients etc., we shall see!!
Thanks for the reply back
Marilyn Smile
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Sun Feb 13, 2005 4:05 pm    Post subject: Skin Expander Reply with quote

Hi Marilyn--welcome to this site. Yes the women on this site are incredible. Incredibly strong, giving and helpful. Linda has been especially great for advice and also a great comfort to me.

Surgery on Friday (inserting skin expander) was no worse than the mastectomy. I assume you had axilliary dissection as well and, for me, that was the worst pain (under arm), not the mastectomy itself. I have some discomfort but mostly just when I try to get up from the couch and so forth as your pec muscles flex and since the implant is under them it's a little ouchy.

It's really cool having a bit of a boob again. I already feel better. They re-excise the scar and insert the expander with a wee bit of saline. I get a little more in 10 days and then once a week for 3 more weeks (4 fills in total). I decided to have both sides done as I was a small chested gal to begin with and I decided if I had to go through all of these surgeries, that I was going to come out of it as happy as I could. So I'm upgrading from an A/B to a full B/small C. Cohesive gel seems to be the thing to use for reconstruction as the saline implants sometimes show with reconstruction as there isn't anything to cover them. The nice thing about gels also is hat they come in all kinds of shapes and sizes and are supposed to be more natural looking and feeling.

Actually reading back it's not apparent to me whether you had a lumpectomy or mastectomy, so that may factor into your decision as to gel/saline as well. Also with a lumpectomy you won't need a skin expander I don't think.

I'll keep you up to date with my progress and I wish you all the luck. Stay strong and BIG healing hugs from me to you. Take care.
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 13, 2005 4:41 pm    Post subject: Reply with quote

Hi again Candycane1
Thanks so much for the message back. I really appreciate your info on what's happening - at least I can know what to expect (that is if I am a good candidate or not)
I did have a radical mastectomy & 14 lymph nodes removed. Also went through 6 months of chemo & five weeks (every day) of radiation.
Like you I am small breasted - so I would like to have the remaining boob enlarged just a bit - I also would choose (if my Doctor thinks it's right for me) cohesive gel implants. As you say (and what I have read about these implants) they are more natural looking & come in many shapes & sizes.
You say that this procedure was like your mastectomy???? Good Lord - was it that bad !! My surgeon who did the mastectomy told me it was no big deal (of course it's easy for him to say)
Hoping you are feeling a bit stronger & better today - keep up the strength - & hoping your husband can be there when you need him.
I will be thinking of you & I'm sending all the best wishes I can muster up to making this surgery the best outcome it can be.
I think it's something to look forward to - I can't wait to throw away this prosthesis that was fitted for me (it weighs a bloody ton !!) I don't think my boob every weighed that much to begin with !!
Take care & keep me posted
Love & more hugs
Marilyn Smile Smile Smile
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Mon Feb 14, 2005 2:54 am    Post subject: Prosthesis Reply with quote

I hate mine too! I just got a free sock type one from the hospital as I knew I would be getting in for reconstruction as soon as I could. As I mentioned in previous posts, I sometimes lose the stupid thing--kick it under the bed or can't find it in the dryer or some stupid thing. Shocked

Anyway, suffice it to say the prosthesis cramps this active gal's lifestyle. I'll be glad when I don't have to worry about that anymore.
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Mon Feb 14, 2005 10:31 pm    Post subject: Reply with quote

Hi again Candycane1
Had to laugh at you kicking your sock under the bed - but you must have decided when you had your mastectomy to go ahead with a breast reconstruction. I was not thinking along those lines at all - I just wanted to contend with what lay ahead - maybe if I had decided that was what I wanted to do - I would be in the process now & maybe finished.
How's it going - a bit easier today
Take care
Love
Marilyn Smile Smile Smile
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Tue Feb 15, 2005 12:32 am    Post subject: Reconstruction Reply with quote

I know what you mean about only wanting to contend with what lay ahead. After two surgeries I didn't want to go through anything more. But, after a couple of months I changed my mind. I had my lumpectomy/axillary dissection in March and my lumpectomy in May. We have huge waiting lists here (B.C.) for reconstruction. I phoned in August and my first choice of surgeon was not available for a consult until August the next year. I went to my second choice and saw him in about 6 or 7 months. So its been a long process. When did you have your surgery?

Today I'm feeling pretty good--hardly used any medication, just one Motrin. Hubby and I went for a walk on the beach and then to a seafood restaurant overlooking the water for lunch. I had to walk slowly but we walked quite a long time and I had no problem.

My biggest problem is BOREDOM. I have this week off and I really want to take it easy to promote better healing and not encourage any complications but there isn't much I can really do without putting strain on myself. If I do nothing I'm fine--but there is only so much reading, watching TV and interneting a person can do! Oh well, it's for my own good I guess. Rolling Eyes I'm just one of those people who are constanting on the move. Even if I'm watching TV I'll pop up and fold laundry or tidy up or something during commercials! Arrg--I've got to learn to relax I guess.
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Tue Feb 15, 2005 12:47 am    Post subject: Reply with quote

To Candycane1 - Never mind the boredom !!! you want these boobs to last a long time - so taking it easy for a week is no big deal. When do you see your Doctor again for a refill??? Very Happy sounds so funny - but you know what I mean - maybe your too active - but I myself am
one that finds it hard to just relax!!
So - remember to take it nice & slow -
Keep in touch - if only to write to us all about how you are doing etc.
Talk to you tomorrow,
Marilyn Very Happy Very Happy Very Happy
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Tue Feb 15, 2005 2:06 am    Post subject: Marilyn Reply with quote

Hi Marilyn! I see my doctor to "fill em up" Laughing a week from today. I'm going shopping later this week to pick up some gel bra inserts so I can try to keep them even as I go along. I guess I'll need new bras too. Talk to you soon!
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Tue Feb 15, 2005 5:26 pm    Post subject: Reply with quote

Hi to Candycane1
On your question of when I had my surgery - it was in August 2003.
Also I wanted to know what their reasoning was for not doing the other breast - I read where you are going to have to pay for this !!!!!!!!!!!!!!
That's a bummer - I sure hope that won't be in my case -
Let us know how the next fill-up is - you said a week from today.
Hope all goes well,
Marilyn Very Happy
Back to top
View user's profile Send private message
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Thu Feb 17, 2005 12:33 pm    Post subject: Reply with quote

Marilyn and Candycane

OMG you girls were cracking me up Laughing toward the end of your posts.
Sorry I haven't been around much. I had the flu and am just now getting over it.

I hear you both about having the lymph nodes removed being the WORST pain! Evil or Very Mad I too had it done, plus the chemo, plus 30 radiation treatments. ENOUGH ALREADY!!!!

Candycane........you sound great Very Happy Very Happy It's so good to hear you're doing so well. I've been thinking about you a lot and was hoping to read an uplifting post from you.

Marilyn, Candycane obviously can be a huge help and wealth of information for you as she goes through this process. It truly is wonderful to have someone going through it share what's it's like.

You ladies ROCK!!!! I'm sure there are other "guests" peaking in on this site and wondering if the procedure is for them.

Thank you both for sharing!!!!!!!!!!!!!!!
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Thu Feb 17, 2005 4:26 pm    Post subject: Reply with quote

I am taking out this message so as not to cause anymore upsets
Marilyn Embarassed Crying or Very sad


Last edited by Marilyn on Fri Feb 18, 2005 12:12 am; edited 2 times in total
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Thu Feb 17, 2005 9:55 pm    Post subject: Linda Reply with quote

Linda-sorry you had the flu-hope you are feeling better. I'm doing really well, although my body lets me know when I've probably had enough. I have been blessed with very un-B.C. like weather this week (it's been clear and sunny), so hubby and I have done a lot of slow walking. I'm naturally energetic and physically fit so I feel a little restless just sitting around after awhile. I feel sort of itchy and tender at the site which I assume means the skin is stretching. I've never been pregnant but I've been told that the skin expander feels much like being pregnant.

By the way, my name is Terri--I just used the Candycane1 name because I thought you were supposed to use an alias. Now I realize it sounds really stupid. It was the first thing that popped into my head at the time. Maybe I should change it. I feel bad with everyone having to type that loooooong name everytime and I was telling one of my friends about you guys and told them that my screen name was "candycane" and she cracked up and said it sounded like a stripper name. Laughing Anyway, this is my first on-line forum experience so...live and learn.

Thanks for keeping in touch. I enjoy hearing from you. Let me know what else is new--you can send me a pm message if you like.
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Thu Feb 17, 2005 10:01 pm    Post subject: Name Change Reply with quote

Just to let everyone know I've changed my stripper name from candycane1 to Terri1. Terri was taken. Sad
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Thu Feb 17, 2005 10:21 pm    Post subject: Reply with quote

So now you are Terri1 at least your consistant with the number 1 after your name - but I think I will always think of you as Candycane1.
I never thought it sounded like a stripper's name - but could be. That could be your next career !! (only kidding)
Happy to hear that you are doing OK.
Keep in touch - especially when you go for your fill-up !!!
Love,
Marilyn:-)
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Thu Feb 17, 2005 11:39 pm    Post subject: Reply with quote

I just want to make myself very clear - I was not referring to anyone on this site as "Cows" I happened upon some pictures - I can't remember what forum they were posted on & I was shocked at some of the bad mistakes that had been done with implants. It was a joke - (I guess a bad one at that - & I certainly apologize to anyone that was hurt or offended. That was certainly not my intention.
If somebody wants to be a double "D" I have no problem with that - each to his own I say -
Again - I apologize to anyone who took my message the wrong way.
Marilyn Crying or Very sad Embarassed Embarassed
Back to top
View user's profile Send private message
linda



Joined: 03 Oct 2003
Posts: 641
Location: Toronto

PostPosted: Fri Feb 18, 2005 10:09 am    Post subject: Reply with quote

Hi Terri! I kind of like candaycane.......it was cute, but Terri is even better because it's your great name Very Happy

You will feel all sorts of weird pins and prickles, stretching, numbness, etc. and they will subsid in time. I don't know about you but I still have numbness under my upper left arm where my lymph nodes where removed and it's been over four years Evil or Very Mad Whatca gonna do though right?

Marilyn, I missed the post about "cows" but obviously it appears that there was a misunderstanding that you feel bad about. Sometimes our words come out "different" in type than if you said them in person KWIM?

The main point is that we welcome you to this board and hope you remain on-line and post as often as you can. Myself, Terri, you, and others are making a difference building this site for Reconstruction patients. It's a very very good thing we're doing. And we get to support each other! Very Happy

(((((((((Group Hug))))))))))))

Linda
_________________
Linda
5'3" 122 lbs
BC Reconstruction Surgery
Left Breast - 375 Cohesive Round Mentor
Right Breast - 225 Cohesive Round Mentor
BA date: Monday, October 20, 2003



Dr. Bendago
#6 in the silicone photo gallery
Back to top
View user's profile Send private message MSN Messenger
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Fri Feb 18, 2005 2:56 pm    Post subject: Reply with quote

Yes I still have numbness too and itchiness sometimes but I feel it's getting a little better. I massage my arm and my underarm incision. It's supposed to keep the lymph fluid moving and keep the incision suptle, thus allowing the lumph fluid to flow through more easily if there is impairment. I also think it might help restore some of the feeling and I believe it helps "smooth out" the scar tissue. It has to be a firm massage though. It's been almost a year and I'm still massaging. I plan to keep doing it just in case because the thought of getting lymphedema freaks me out!

Linda and Marilyn --were you advised to wear a compression sleeve when flying? I don't have one yet but we are supposed to be going to Vegas in May so I'm thinking of getting one. Something about cabin pressure causing a problem. I find that everyone gets a different story about what to do and what not to do, don't you?
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Fri Feb 18, 2005 5:44 pm    Post subject: Reply with quote

Hi Linda & Terri - I flew last November & nobody told me to wear a compression sleeve - but I didn't have any swelling after the mastectomy.
There is a lot of numbness & my armpit & it itches - it drives me crazy - because there is no feeling there.
Hope your feeling better today Linda
Take care the both of you,
Marilyn Smile
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Fri Feb 18, 2005 6:16 pm    Post subject: Reply with quote

I know what you mean marilyn--my arm and armpit drive me crazy with itchiness. But I wonder if that is a sign that feeling is coming back.

I have no swelling either but it was my understanding that flying might cause lymphedema. I think the thing is---they don't really know what causes it so they tell you to take all kinds of precautions. I golf and I was told to wear a compression sleeve--I don't and I've been fine.

The other thing now is I find it really hard to shave my armpit Embarassed It's not as flat as it used to be. They say not to use a razor but shaver gives me razor burn. I'm not sure which is worse.
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Fri Feb 18, 2005 6:46 pm    Post subject: Reply with quote

You mean you have hair growing in that armpit Surprised or do you mean the other armpit-- if it's one that you had the mastectomy - Horray for you - not me - Lymphedema does not happen to everyone - I know a friend of mine still gets this condition & she has just completed her breast reconstruction.
I think your Doctor would have advised you - if at first you were getting any swelling in that arm - so I don't think you have to worry about it.
But - you could always ask the Doctor what he thinks??? Gee - the time you are going to Vegas - just maybe the time I'm seeing the Platic Surgeon. Very Happy
I had to fly to Miami & then was on a 14day cruise last November - & even in all that hot weather - I didn't have any swelling in my arm (only in my feet!!).
Talk to you soon,
Marilyn Smile
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Fri Feb 18, 2005 9:59 pm    Post subject: Reply with quote

You mean you DON'T have hair growing in that armpit (mastectomy side)? I'd say you're the lucky one--it's really hard to shave on that side. Evil or Very Mad

Lucky you taking a cruise. I really need a vacation right now but don't want to go anywhere at the moment where everyone is wearing swimsuits and I can't Evil or Very Mad

Geez I put a lot of angry faces in this post Laughing

See ya!
Back to top
View user's profile Send private message
Marilyn



Joined: 06 Feb 2005
Posts: 118
Location: Toronto

PostPosted: Sun Feb 20, 2005 2:06 pm    Post subject: Reply with quote

Hi Terri - Just wondering if you got my pm message???
I'm not sure if I did it right - what does the username mean?? Is that what you are going by on this site?? Am a little confused. Also when I try to change the font size - it doesn't work for me -- What am I doing wrong??
Hope you are doing OK - you too Linda,
Marilyn Confused Confused Confused Confused
Back to top
View user's profile Send private message
terri1



Joined: 27 Dec 2004
Posts: 67

PostPosted: Sun Feb 20, 2005 2:38 pm    Post subject: Reply with quote

I did get one pm message from you the other day--so I think it's working. As for changing fonts, just click on the boxes above. I've coloured my text red--I think it's one of those things where you can't see it until your send it.
Back to top
View user's profile Send private message
Display posts from previous:   
Post new topic   Reply to topic    www.canadaba.ca Forum Index -> Breast cancer/reconstruction support section All times are GMT - 4 Hours
Goto page 1, 2  Next
Page 1 of 2

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum


Powered by phpBB © 2001, 2005 phpBB Group